We adopted the Specific Carbohydrates Diet following a Crohn’s diagnosis of our youngest son. He started the diet when he was in elementary school, and now, years later, still continues to follow an SCD-based diet as a college student. His diet allowed him to have an active and happy childhood, free of IBD worries and without medications. Throughout this time he was monitored closely by the wonderful GI team at Seattle Children’s Hospital to ensure sustained wellness. Fortunately, his doctors were open-minded scientists and he became the prototype model for what is now a growing diet-therapy program at Seattle Children’s Hospital. This program is led by Dr. David Suskind and named NiMBAL (Nutrition in Immune Balance).
Nowadays, the rest of our family is also benefiting greatly from diet therapies (we use SCD combined with principals from other diet therapies, to tailor and optimize per personal needs of different family members). We are fortunate and grateful for the ways diet therapies helped us, and continue to mentor hundreds of families who use diet to manage pediatric IBD.
We are happy to see the growing awareness to diet therapies among the pediatric GI doctors, and happy to have had the opportunity to be a catalyst to this revolution. Our focus is now shifting to concern about the resistance and denial among adult GI doctors that are still telling patients that there is no link between diet and IBD.
In the coming months, we have several opportunities for open dialogs with leading gastroenterologists, and we would like to plant more seeds to improve the acceptance of diet therapies. For this reason, we would like to gather thoughts and experiences from our community.
Please share your thoughts. What do you wish your doctor knew about SCD? Did the diet help you? Who is your support system when it comes to diet? How could your doctor help?