Teddi Bledsoe and her beautiful family went through several years of the agonizing roller-coaster of pediatric Crohn’s and PSC before they found the right formula of diet and medications that brought their son Colt to remission.
Teddi admits: Many times I felt despair and wondered why things seem to work for everyone else's child and not mine. Yet ultimately answers were found and health resumed. I feel it is important to stress that so often it’s not the quick fix we hope for, and definitely not a one size fits all, but staying the course pays off.
As many parents can attest, the emotional load of worries lingers in the mind long after remission is achieved. Teddi was blessed when a coincidental meeting helped renew her trust in the power of the body to heal and thrive long term. Here is her emotional story - the gift of hope that came to visit her family farm.
Severe Crohn’s disappeared with antibiotic treatment for MAP
Doctor Judith Lipton leads a busy life. She travels the world, raises many animals at her horse farm, visits family and friends, trains her dogs and enjoys multiple hobbies. Crohn’s is no longer a concern for her.
Dr. Lipton struggled with IBD from 1986 until 2004. She had multiple flares, sometimes called Ulcerative Colitis, but finally Crohn’s. Her colonoscopies in 2003 showed multiple penetrating abscesses throughout her colon and she was hospitalized twice in 2004 from blood poisoning due to the holes in her colon.
Tracy: My daughter Atty was diagnosed with severe Crohn's in July 2016. Her GI doctor said it was the worst colon she had seen. Crohn’s was present in her esophagus and throughout her colon, as well as a terrible skin rash all over her legs and part of her upper body. Needless to say, the hospital stay was harrowing, as it included two blood transfusions, a colonoscopy, endoscopy, and an MRE.
Like many other kids, our son is enthralled by the Harry Potter book series. He recently finished the last in the series (Harry Potter and the Deathly Hallows) and promptly began the first book all over again. So, when I realized Harry Potter’s birthday was coming up in a couple of weeks, I thought it would be a great opportunity to celebrate our family’s love for these stories.
Unlike a lot of other families though, ours is on a medical diet – the Specific Carbohydrate Diet – for my son’s ulcerative colitis diagnosis. We all follow SCD in support of him.
Dr. Christine Bowen is a diet therapy expert. She is an experienced naturopathic physician, specializing in treating gastrointestinal conditions like IBD, IBS and SIBO, and a host of other conditions that can benefit from gut healing.
We have known her for years, and were delighted to see her adopting the Specific Carbohydrates Diet (SCD) and using it successfully on herself and her patients.
She participated in both SCD symposiums at Seattle Children’s Hospital, and lectured about SCD in patient education events organized by the Crohn’s and Colitis Foundation (CCFA) NW. Recently, I got together again with Dr. Bowen for tea and SCD snacks to chat about her personal experience with SCD and the use of the diet in her practice.
Guest post, meal plan, and photos by Natalie Holladay
I didn’t expect the year 2016 to start out with a diagnosis of IBD for my son. A family history of Celiac Disease left me almost hopefully anticipating to hear something familiar as the verdict. I desperately wanted an accurate diagnosis so that we could start working to heal his damage and reduce his symptoms. I knew a few people with Crohn’s Disease, but knew very little about IBD, symptoms, management or prognosis. I’m not sure I had ever heard of – or paid attention if I had – anyone I knew with Ulcerative Colitis.
Most people respond well to SCD as it is presented on BTVC. Sometimes, a more restricted version of the diet is needed to help the body heal. In our parent support group we have seen that extra-sensitive IBD kids respond well to a more restricted form of SCD when first starting the diet, and over time as they heal, they gradually expand their diet and are able to enjoy the full scale of SCD foods.
Morana Bodmer (PhD) is a researcher by nature, a scientist by training, and the mother of three children. When her son Noah was diagnosed with Crohn’s, she and her husband, a medical doctor, decided to use SCD as a dietary therapy.