I came home yesterday to find a food pile on our kitchen counter. Larabars, jerky packs, raisins boxes, nut baggies, etc., many covered with lint and dust, some partially squashed, some expired. As it turns out, all were salvaged from the bottom of the teen’s backpack. Sigh.
Will you be informed of serious health issues after your child turns 18? Would you be able to help if needed?
At age 18, teens gain legal control over all their healthcare information. HIPAA privacy laws prevent parents from accessing their child’s information and restrict a parent’s ability to influence medical care.
When parents send their teens to college they assume that, after paying for tuition and for health insurance, they will have the right to be informed and consulted in case of an accident or when a severe health challenges arises. NOT SO!
Restricted diets are difficult. Raising teens is not for the faint at heart. Add a medical condition that causes the need for a restricted diet, and you are stuck in an endless struggle to juggle and balance these three challenges.
Can it be done? ...continue reading "Teens and diets"
Maintaining SCD (or other restricted diets) can be done away from home.
Sleep away summer camps are the highlight of every summer, and our son loves them. CCFA Camp Oasis is his favorite every year. He travels to camp with a week’s worth of SCD meals, all packed in large coolers for the long drive, and labeled meticulously so the wonderful kitchen staff knows exactly what to serve him each day. We start preparing a month before camp, cooking large amounts of food, freezing single portions, labeling everything, and printing a detailed menu guide.
Here are the menus for food we sent to summer camp in the past few years:
We set a 504 plan at school to accommodate the diet and to help support your child's specific needs. IBD is a recognized medical disability which entitles a child to accommodations that can be implemented in school. ...continue reading "SCD At School"