Managing IBD and using restricted diets have an interesting trait in common: both require creative problem solving. At SCD Families we have quite a few parents who tapped into their creative sides and were inspired to start blogs and businesses related to their SCD experiences.
Check out the incredible recipes and the various perspectives on the joys and challenges of using healing diets in the family in the blogs below. This is the first list, more to come.
...continue reading "SCD parents share their experiences and recipes"
Highlights from the Crohn’s and Colitis Congress 2019
The “Nutritional Therapy for IBD” exhibit concluded another successful mission at the Crohn’s and Colitis Congress 2019 in Las Vegas. The unique exhibit was created by Kim Beall, Pharm.D., Sheri Pilley, CHC, Gisele Woodward MSW, and David Suskind, MD and is sponsored by the Woodward Crohn’s and Colitis Foundation, with the goal to promote awareness for the role of nutrition in management of IBD. It was first introduced at the NASPGHAN 2018 conference (North American Society of Pediatric Gastroenterology, Hepatology and Nutrition), and was extremely well received, with hundreds of clinicians stopping by to learn about dietary therapy and pick up resources like flash drives loaded with data on nutrition in IBD, patient handouts on diet, and copies of the Nutrition in Immune Balance book, while sampling SCD food.
Kim Beall, a Doctor of Pharmacy, who is also an experienced user of SCD, shares selected conference highlights below related to diet and microbiome.
...continue reading "Nutrition and Microbiome in IBD"
Many popular diets instruct people to avoid dairy, for a variety of reasons. When you consider the pros and cons of personal dairy consumption, you may want to add one more variable to the decision equation: should you avoid A1 milk and try A2 milk instead?
A2 milk refers to the protein A2 beta casein, which has been scientifically identified as containing the original form of beta casein produced by cows thousands of years ago. Some people who experienced intolerance for regular dairy find that they can tolerate A2 dairy well. These days, A2 milk is available in many supermarkets in the USA and in Europe, so experimenting with this option is easy.
...continue reading "A2 milk and the dairy debate"
Pineapple juice can replace barium contrast during MRI with contrast (MRE)
MRE (Magnetic Resonance Elastography) is a specific type of MRI (Magnetic Resonance Imaging) performed with contrast material to produce detailed images of the small intestine. MRE is preferred over CT (Computed Tomography) to reduce repeated radiation exposure, especially because the nature of IBD requires repeat examinations which can result in large cumulative doses.
However, some patients have concern about using the barium contrast. Mild side effects may include stomach cramps, diarrhea, nausea, vomiting or constipation. Rare side effects include allergic reactions like hives, itching, agitation or fast heartbeat. A patient is at greater risk of an adverse reaction to barium-sulfate contrast materials if he has a history of asthma, hay fever, or other allergies.
As it turns out, there are effective alternatives to using barium, namely the artificial drink Breeza or simply natural pineapple juice. Currently there is no clear unified standard, and it is unfortunate that not all doctors and not all imaging centers are willing to adopt these advanced options due to lack of awareness and indifference to patient’s comfort.
...continue reading "MRE imaging for gastrointestinal disorders"
Dr. David Suskind, a Professor of Pediatrics at the Department of Gastroenterology at Seattle Children's Hospital, is known for his ongoing efforts to study the intricate connections between IBD, Nutrition, and the microbiome.
He conducts ongoing research, participates in and speaks at national conferences, and, most importantly, he is extremely generous with his time and attention when he meets his young patients and their worried parents at the hospital every day.
As part of his mission to teach the importance of nutrition, he created the site Nimbal. The site was launched a few years ago to help patients, families, and healthcare providers integrate dietary therapy as treatment for Inflammatory Bowel Disease.
This week Dr. Suskind is launching yet one more tool he developed to help IBD kids: a comic book for IBD education with an emphasis on the microbiome and healthy nutrition.
...continue reading "The microbiome and healthy nutrition – A new comic book by Dr. David Suskind"
The European Crohns and Colitis Organization (ECCO) is the largest forum of medical IBD specialists in the world. The 2018 ECCO Congress drew 6,676 delegates from 86 different countries. Over one thousand abstracts were accepted and presented this year, covering overwhelming amounts of data and analysis. The wide range of topics included novel treatment strategies, IBD diagnosis, disease predictions, management of IBD, evolving concepts in IBD, and Pediatric IBD.
I encourage you to check the detailed agenda of the event. The long lists of studies and presentations demonstrate the magnitude of the IBD challenge, and the enormous investments of money and talent that are being invested in finding better treatment options. This raises hopes for better understanding and ultimately resolution and cure of IBD.
...continue reading "Deeper understandings and improved treatments for IBD"
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John Zoshak is a graduate student in the Human Centered Design and Engineering Program at the University of Washington. He is working with Dr. David Suskind of Seattle Children’s Hospital on an independent analytical study that will look at dietary therapy for IBD from a user perspective. This is a quality improvement field study, with the goal of easing the burden of adherence to dietary therapy.
...continue reading "A new study will examine IBD diet from a user perspective"
A growing number of posts within the online SCD communities show a photo of a manufactured food product and ask the group "Is this legal?" Unfortunately, there can never be a perfect answer to this question.
...continue reading "Is this SCD legal???"
A simple, delicious, colorful path to wellness
A strong body of research supports the idea that a vegetable centered diet is key to wellness. Meals based on plant foods are rich in fiber, vitamins, minerals and phytochemicals. Add reasonable amounts of good protein sources, like pastured eggs, sea food, some organic meats, top with healthy unprocessed fats, and you have achieved the optimal diet according to the latest leaders in nutritional research .
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Many of us, who are practicing diets free of refined sugars, use honey as a sweetener of choice. Natural, full of micronutrients, antibacterial, what’s not to like? Why limit the good stuff?
For the most part, our body recognizes honey as a simple sugar, and science has already established the fact that sugar promotes inflammation. In fact, many dieters who only saw limited results from eating classic SCD, found that avoiding honey resulted in better progress towards healing.
...continue reading "Honey and SCD – sweetness with a sting"