2 Comments

  1. Awesome blog you have here but I was curious if you knew
    of any discussion boards that cover the same topics discussed here?
    I’d really like to be a part of community where I
    can get opinions from other experienced individuals that share the same interest.
    If you have any recommendations, please let me know. Appreciate it!

    • Thank you. there are three discussion groups that I can recommend.

      For Facebook users, there are two closed groups where membership must be requested and approved by a moderator. The “Breaking the Vicious Cycle” SCD group is the largest SCD Facebook group, moderated by highly responsible folks. If you are the parent of a child with IBD, there is a pediatric SCD group, SCD Families, that I moderate. It is focused on the specific challenges of raising children on SCD. SCD Families only accepts parents of children and teens with a medical diagnosis of IBD.

      If you are not a Facebook user, there is a Yahoo discussion board moderated by one of the top SCD experts, BTVC-SCD with over 10,000 members that you can sign up for.
      Those should be fine to get you started.

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