The 2017 Educational Conference for IBD families, organized by the Crohn's & Colitis Foundation Northwest in partnership with Seattle Children’s Hospital, featured the latest information and guidance, and was helpful for both the newly diagnosed as well as for veteran IBD families. Leading pediatric IBD providers covered a variety of engaging topics. Even children with IBD and their siblings were encouraged to participate in a special track of fun educational activities. Lunch was provided, and generously included SCD compliant options.
Jeffrey Berger, moderator of the Facebook group BTVC SCD , conducted a survey titled: "Who We Are". The graphs below, reflect some of the data Jeffrey collected from his group’s 2000+ members.
Exclusive Elemental Nutrition (EEN) has been studied extensively worldwide and has been scientifically proven to be more effective than steroids in achieving sustained remission from IBD flares in most cases. It refers to an exclusive liquid diet using either elemental or polymeric formulae. The patients are not allowed to have any other dietary items except plain water and sometimes a few other beverages.
EEN is safer, and can be easier to endure, than the side effects of steroids. It is a first-line treatment for IBD flares in Japan and in some European countries. It does require close medical supervision, especially when practiced by pediatric patients.
SCD Families is only open to parents of children and teens with IBD. The goal of this group is to share information, tips and experiences relevant to parents maintaining or wishing to learn about using the Specific Carbohydrate Diet (SDC) as nutritional therapy to manage IBD.
How would you feel if you found out that your own doctor received $110,000 in personal payments and $320k of ‘research’ funding from the same pharmaceutical companies that manufacture the drugs he prescribes for you?
"A major conflict of interest is at work when a physician has accepted payments from a drug or device-making company whose products he or she then prescribes or implants. The Sunshine Act will be embarrassing to some and infuriating to others, but is an excellent step toward consumer protection." Marvin Lipman, M.D., Consumer Reports Senior Medical Adviser, 2014.
The book Nutrition In Immune Balance (NIMBAL) Therapy: Using Diet to Treat Inflammatory Bowel Disease was written by Dr. David Suskind, an attending physician at Seattle Children's Hospital and Professor of Pediatrics at the University of Washington School of Medicine. During the past year this book was distributed to the medical community. Following strong supportive feedback, it is now broadly available for purchase online at mybookorders.com or with Amazon.
A few years ago I shared this presentation with the GI team at SCH about the success we had in using SCD to manage our son’s Crohn’s.
This list of doctors will be updated on a regular basis. The names are being submitted by parents from the support group I moderate on Facebook, SCD Families.
SCD helped this whole family, now the Woodward family foundation is committed to help finance more research and teach other families about the diet that changed their lives.
“At our local children's hospital here in the Midwest, requests from parents for a mentor with diet and nutrition experience are ever increasing. It is my hope that our medical personnel will eventually acknowledge the need for alternative treatment options for IBD. I am happy to provide support and encouragement to families just like us, who continue to persevere daily, keeping our eyes on the goal of helping our kids live their best life”. ...continue reading "Support for IBD Parents in the Midwest"