Stanford Children’s Health is now enrolling pediatric patients for phase 2 of the study: the Specific Carbohydrate Diet Curriculum– Patient and Caretaker’s Outlooks (SCRUMPTIOUS) Study.
The IBD Center at Lucile Packard Children’s Hospital at Stanford University is constantly striving to improve patients experience and outcome. In an effort to further help families who choose to incorporate the dietary therapy for IBD, the Stanford GI team developed last year a needs assessment survey.
Based on input from hundreds of SCD users who participated in the study, the team has created an innovative and tailored SCD curriculum and is currently recruiting participants for the second phase of the study. The second phase of the study is evaluating the impact of an innovative and tailored SCD curriculum on the knowledge and perspectives of patients with IBD, and their caretakers.
The original plan was to invite families to a local commercial kitchen to cook and learn together, but in light of the pandemic, the team had to shift gears quickly. They came up with a 90-minute online curriculum of videos that include a few recipes as well as information on the ins & outs of the SCD, frequently asked questions about nutrition on the SCD and the science of SCD.
Since the course is all virtual and does not provide any specific medical advice, Stanford’s IRB has approved the request to invite people from anywhere to participate.
This is GREAT news for pediatric IBD families anywhere in the world!
You are invited to participate in Phase II of the study if you qualify by the following criteria:
- Interested in the SCD and/or have been on the SCD fewer than 12 months (0-12 months on the diet)
- Ages 3-21 years
- Have medical diagnosis of IBD
There will be a pre and post survey about participant’s perception of the SCD and how they think the curriculum can be improved for the future. Each family that is eligible to participate and finishes the surveys will be mailed a $15 gift card.
After the completion of the study, the entire curriculum will be posted on the Stanford Children’s IBD website and will be available to the public. This can become a great resource for all SCD families, both new users of the diet and even ‘veteran’ dieters. We can all use refreshers, reinforcement of knowledge, and new ideas – even after years of practicing the diet.
- January 26, 2021 4- 5:30pm, Pacific time
- February 2, 2021 4- 5:30pm, Pacific time
- February 8, 2021. 4- 5:30pm, Pacific time
Please email Nancy Rivera at firstname.lastname@example.org for more information.