The 2017 Educational Conference for IBD families, organized by the Crohn's & Colitis Foundation Northwest in partnership with Seattle Children’s Hospital, featured the latest information and guidance, and was helpful for both the newly diagnosed as well as for veteran IBD families. Leading pediatric IBD providers covered a variety of engaging topics. Even children with IBD and their siblings were encouraged to participate in a special track of fun educational activities. Lunch was provided, and generously included SCD compliant options.
Jeffrey Berger, moderator of the Facebook group BTVC SCD , conducted a survey titled: "Who We Are". The graphs below, reflect some of the data Jeffrey collected from his group’s 2000+ members.
Severe Crohn’s disappeared with antibiotic treatment for MAP
Doctor Judith Lipton leads a busy life. She travels the world, raises many animals at her horse farm, visits family and friends, trains her dogs and enjoys multiple hobbies. Crohn’s is no longer a concern for her.
Dr. Lipton struggled with IBD from 1986 until 2004. She had multiple flares, sometimes called Ulcerative Colitis, but finally Crohn’s. Her colonoscopies in 2003 showed multiple penetrating abscesses throughout her colon and she was hospitalized twice in 2004 from blood poisoning due to the holes in her colon.
Guest post by Tracy and Atty
Tracy: My daughter Atty was diagnosed with severe Crohn's in July 2016. Her GI doctor said it was the worst colon she had seen. Crohn’s was present in her esophagus and throughout her colon, as well as a terrible skin rash all over her legs and part of her upper body. Needless to say, the hospital stay was harrowing, as it included two blood transfusions, a colonoscopy, endoscopy, and an MRE.
The Seattle CCFA NW educational conference, held this past weekend, provided an opportunity to meet and chat with other people who are using diet therapies.
This dish was created in the tiny kitchen of a college dorm. Gil is eating SCD since he was in elementary school. Now a college student, he first created this dish in a regular pot at his dorms. On his last visit home he adapted it and made it in the instant pot, which saves cooking time and results in a delicious soft stew meat.
Exclusive Elemental Nutrition (EEN) has been studied extensively worldwide and has been scientifically proven to be more effective than steroids in achieving sustained remission from IBD flares in most cases. It refers to an exclusive liquid diet using either elemental or polymeric formulae. The patients are not allowed to have any other dietary items except plain water and sometimes a few other beverages.
EEN is safer, and can be easier to endure, than the side effects of steroids. It is a first-line treatment for IBD flares in Japan and in some European countries. It does require close medical supervision, especially when practiced by pediatric patients.
Guest post by Nicole Chevalier
Like many other kids, our son is enthralled by the Harry Potter book series. He recently finished the last in the series (Harry Potter and the Deathly Hallows) and promptly began the first book all over again. So, when I realized Harry Potter’s birthday was coming up in a couple of weeks, I thought it would be a great opportunity to celebrate our family’s love for these stories.
Unlike a lot of other families though, ours is on a medical diet – the Specific Carbohydrate Diet – for my son’s ulcerative colitis diagnosis. We all follow SCD in support of him.
© 2010 by Marilyn L. Alm
This “Chocolate” cake is the most famous SCD cake. It is known to be the center-piece of many celebratory occasions. It is not only a fancy birthday cake, but also makes great brownies, or muffins, or cookies, when baked in different bakeware. Vanilla ice-cream between two “chocolate cake” cookies is a favorite birthday treat at many SCD kid's birthday parties. When pecan flour is not available, the cake works well with almond flour.
Marilyn Alm. is a veteran SCD expert and the owner and mentor of the international SCD Yahoo group (BTVC-SCD@yahoogroups.com). Like thousands of other SCD users, I am forever grateful for her life’s work and her generous mentoring.
She is also gifted in the kitchen, and is known to create many mouthwatering SCD recipes. We love this cake and share this recipe here with Marilyn’s permission.