This was our first presentation in front of the GI team at Seattle Children's Hospital (SCH) in 2012. This was the starting point of a long collaboration with the team at SCH that resulted in the first medical symposium ever held about the use of SCD as a therapeutic diet, host by Dr. David Suskind of SCH in Seattle in January 2014.
Dr. Suskind and the GI team at SCH have since led and continue to conduct research about SCD and other therapeutic diets as treatments for IBD.
We started as a single family, isolated, struggling to find a solution for pediatric Crohn's. As we began mentoring other families that had ill kids and were interested in the SCD as a therapeutic diet, our personal story expanded to include their stories as well. At first we used to invite each new family to our home so that they could learn in person how to start the diet and how to make it work. The number of interested parents increased weekly. We would come home and find phone messages on the answering machine, or wake up and find emails from desperate parents. To help address the growing need, I started periodic group mentoring sessions, but this did not help parents that lived far away. Reluctantly, I had to overcome my technical gaps and my strong need for privacy, and in 2014 I started a closed group on Facebook to support parents of IBD children and teens. The group is called SCD Families. These are just a few of the emails and messages sent to me during this time.
Identifying details have been removed to protect the privacy of IBD patients and their families
...continue reading "SCD Family Stories"
I was raised in a "science town", near the green lawns of The Weitzman Institute of Science. The motto in my home was "if it doesn't have a scientific proof, it doesn't exist". In my adult life, I am surrounded by family and friends who are scientists, engineers and doctors in different fields. They all appreciate well planned and well executed research, factual statements backed by hard data, statistics, graphs, and numbers.
Yet here I was, about to make a huge decision that would affect my son's health, well-being and future… and my choice was so un-characteristic. At the time I was suggesting that we consider the SCD instead of immunosuppressant drugs, the diet was not backed by modern research and lacked statistical analysis of measured successes. Instead of following the common medical wisdom and the well-researched pharmaceutical protocol, we chose WHAT?
...continue reading "How do you measure success?"
If it seems like the diet is not working and there is no improvement in the child's symptoms, check these potential problem areas: ...continue reading "Diet Problems"
Whether you wipe your nose on your sleeve, a tissue or an expensive handkerchief, the cold virus is a uniquely humbling experience. In most cases it takes just a few days of good self-care to bounce back to wellness, but a lingering cold, a sinus infection or a bad flu can be taxing on the immune system and can trigger a gut flare.
Cold and flu prevention are still an unresolved frontier. We can already book a flight to space, but we have not made much progress in the fight against the common cold virus. ...continue reading "Colds"
Contrary to the old joke, plumbers are not the only ones that can turn shit into gold. Retail and pharmacy shelves full of laxative products are proof that when our ‘pipes’ are ‘clogged’ we will pay handsomely for fast relief.
Constipation is not normal and not pleasant. It is important to figure out the reasons for one’s constipation and try to address the root cause of the problem. ...continue reading "Constipation Protocol"
We set a 504 plan at school to accommodate the diet and to help support your child's specific needs. IBD is a recognized medical disability which entitles a child to accommodations that can be implemented in school. ...continue reading "SCD At School"
Use prepared, “ready to use” staples as long as you are sure there are no additives: frozen veggies, deboned no-skin chicken breast, etc.
Have some legal cans of chicken, tuna and salmon- for emergency as well as for a quick meal at the end of a long busy day. ...continue reading "SCD Kitchen Tips and Shortcuts"
Stage one is “defensive SCD”. We use it when the digestive system and the immune system might be extra sensitive, for example when sensing a bad cold or a flare which might be brewing. It can also be used as an introduction to SCD for newcomers. ...continue reading "Starting SCD or Handling A Flare"