When parents send their teens to college they assume that when paying for their child’s tuition and health insurance, they will have the right to be informed and consulted in case of an illness, an accident or other health challenges. THIS IS NOT SO! Parents have no legal right to obtain medical information about their college age son or daughter.
We started the Specific Carbohydrate Diet (SCD) when our son was in elementary school and continued to practice the diet consistently all the way through high school. We mentored hundreds of SCD families and became actively involved in supporting diet therapies research. With all of this accumulated experience, I expected the shift to SCD during college to be easy and go smoothly.
It was not as easy as we had expected.
Most people respond well to SCD as it is presented on BTVC. Sometimes, a more restricted version of the diet is needed to help the body heal. In our parent support group we have seen that extra-sensitive IBD kids respond well to a more restricted form of SCD when first starting the diet, and over time as they heal, they gradually expand their diet and are able to enjoy the full scale of SCD foods.
Morana Bodmer (PhD) is a researcher by nature, a scientist by training, and the mother of three children. When her son Noah was diagnosed with Crohn’s, she and her husband, a medical doctor, decided to use SCD as a dietary therapy.
Our SCD lifestyle is challenging, funny, yummy, touching, frustrating, hopeful and dedicated. Here are some glimpses into different aspects in the lives of families that are maintaining a therapeutic diet.
The images below are links to galleries of photos that were submitted by members of the SCD Families support group.
I came home yesterday to find a food pile on our kitchen counter. Larabars, jerky packs, raisins boxes, nut baggies, etc., many covered with lint and dust, some partially squashed, some expired. As it turns out, all were salvaged from the bottom of the teen’s backpack. Sigh.
Will you be informed of serious health issues after your child turns 18? Would you be able to help if needed?
At age 18, teens gain legal control over all their healthcare information. HIPAA privacy laws prevent parents from accessing their child’s information and restrict a parent’s ability to influence medical care.
When parents send their teens to college they assume that, after paying for tuition and for health insurance, they will have the right to be informed and consulted in case of an accident or when a severe health challenges arises. NOT SO!
Our son is a diet veteran, with over five years of eating strict SCD and mentoring people new to the diet. He knows that this diet granted him freedom from pain and from medications. However, while the diet led to wellness, the diet also created some dependencies that we cannot ignore.
Restricted diets are difficult. Raising teens is not for the faint at heart. Add a medical condition that causes the need for a restricted diet, and you are stuck in an endless struggle to juggle and balance these three challenges.
Can it be done? ...continue reading "Teens and diets"
Maintaining SCD (or other restricted diets) can be done away from home.
Sleep away summer camps are the highlight of every summer, and our son loves them. CCFA Camp Oasis is his favorite every year. He travels to camp with a week’s worth of SCD meals, all packed in large coolers for the long drive, and labeled meticulously so the wonderful kitchen staff knows exactly what to serve him each day. We start preparing a month before camp, cooking large amounts of food, freezing single portions, labeling everything, and printing a detailed menu guide.
Here are the menus for food we sent to summer camp in the past few years:
Traveling while maintaining a restricted diet can be a challenge. Planning ahead and keeping a running list of essential items helps. Here is our master checklist for travel, Gut Harmony Ultimate Travel List. You can print it out, adapt it to the kind of travel you plan, and check items off as you pack.
Happy Travels...Bon Voyage!