Does your gastroenterologist support dietary therapy for IBD?
IBD patients who are interested in medically guided and supervised dietary therapies often face resistance from their doctors. In order to be able to advocate for their choices, patients must understand the complexities of the diet debate. The following recorded presentations highlight different aspects of this debate, so that diet users can respond to doubt and distrust. We will start with a presentation that focuses on the limitations of diet therapies, and we will follow with presentations of doctors who are diet advocates.
...continue reading "The Diet Debate"
Highlights from the Crohn’s and Colitis Congress 2019
The “Nutritional Therapy for IBD” exhibit concluded another successful mission at the Crohn’s and Colitis Congress 2019 in Las Vegas. The unique exhibit was created by Kim Beall, Pharm.D., Sheri Pilley, CHC, Gisele Woodward MSW, and David Suskind, MD and is sponsored by the Woodward Crohn’s and Colitis Foundation, with the goal to promote awareness for the role of nutrition in management of IBD. It was first introduced at the NASPGHAN 2018 conference (North American Society of Pediatric Gastroenterology, Hepatology and Nutrition), and was extremely well received, with hundreds of clinicians stopping by to learn about dietary therapy and pick up resources like flash drives loaded with data on nutrition in IBD, patient handouts on diet, and copies of the Nutrition in Immune Balance book, while sampling SCD food.
Kim Beall, a Doctor of Pharmacy, who is also an experienced user of SCD, shares selected conference highlights below related to diet and microbiome.
...continue reading "Nutrition and Microbiome in IBD"
The award will be presented this weekend at the annual Crohn's & Colitis Congress 2019. The Catalyst for IBD Research award is given to outstanding IBD researchers who have displayed courage and visionary leadership in the field of IBD basic, translational, or clinical research. It is granted for significant contributions that are bringing us closer to fulfillment of the Crohn’s and Colitis Foundation's mission of finding cures for IBD and improving the lives of patients with these diseases.
Dr. Suskind is a Professor of Pediatrics in the Division of Gastroenterology at Seattle Children's Hospital and at the University of Washington. His research is focused on the effects of diet on disease activity and the fecal microbiome in inflammatory bowel disease. He is the founder of Nimbal and also authored a comic book titled ‘Professor Nimbal: Explorations in Crohn’s and Colitis’, a book for kids with IBD to explain IBD in terms which they can understand.
...continue reading "Dr. David Suskind receives the Catalyst for IBD Research award"
Three passionate professionals that are also parents utilizing diet to treat children with Crohn’s Disease, together with Dr. David Suskind of Seattle Children’s Hospital, created the “Nutritional Therapy for IBD” exhibit. This exhibit's first inauguration was held at the NASPGHAN 2018 conference (North American Society of Pediatric Gastroenterology, Hepatology and Nutrition).
...continue reading "A new nutritional therapy exhibit at GI medical conferences"
Parents who use grain-free and sugar free diets to heal their children are on high alert before certain holidays. Valentine’s day can feel like a cultural assault for these families. Chocolate commercials, jars full of treats in many public places, and school classroom events centered around sweet treats. At SCD Families we have many ambitious parents who are determined to help their grain-free sugar-free kids feel included in the celebrations without compromising their diet.
...continue reading "Valentine’s day fun for Grain-free Sugar-free kids (SCD, Paleo, GAPS)"
Many popular diets instruct people to avoid dairy, for a variety of reasons. When you consider the pros and cons of personal dairy consumption, you may want to add one more variable to the decision equation: should you avoid A1 milk and try A2 milk instead?
A2 milk refers to the protein A2 beta casein, which has been scientifically identified as containing the original form of beta casein produced by cows thousands of years ago. Some people who experienced intolerance for regular dairy find that they can tolerate A2 dairy well. These days, A2 milk is available in many supermarkets in the USA and in Europe, so experimenting with this option is easy.
...continue reading "A2 milk and the dairy debate"
Multiple surgeries and six years of extreme complications due to Crohn’s almost broke Joshua's body and spirit – but he fought back and triumphed!
...continue reading "Joshua Bradley – the autoimmune athlete. Crohn’s will not stop him!"
Pineapple juice can replace barium contrast during MRI with contrast (MRE)
MRE (Magnetic Resonance Elastography) is a specific type of MRI (Magnetic Resonance Imaging) performed with contrast material to produce detailed images of the small intestine. MRE is preferred over CT (Computed Tomography) to reduce repeated radiation exposure, especially because the nature of IBD requires repeat examinations which can result in large cumulative doses.
However, some patients have concern about using the barium contrast. Mild side effects may include stomach cramps, diarrhea, nausea, vomiting or constipation. Rare side effects include allergic reactions like hives, itching, agitation or fast heartbeat. A patient is at greater risk of an adverse reaction to barium-sulfate contrast materials if he has a history of asthma, hay fever, or other allergies.
As it turns out, there are effective alternatives to using barium, namely the artificial drink Breeza or simply natural pineapple juice. Currently there is no clear unified standard, and it is unfortunate that not all doctors and not all imaging centers are willing to adopt these advanced options due to lack of awareness and indifference to patient’s comfort.
...continue reading "MRE imaging for gastrointestinal disorders"
The doctor that brought the gift of hope
Teddi Bledsoe and her beautiful family went through several years of the agonizing roller-coaster of pediatric Crohn’s and PSC before they found the right formula of diet and medications that brought their son Colt to remission.
Teddi admits: Many times I felt despair and wondered why things seem to work for everyone else's child and not mine. Yet ultimately answers were found and health resumed. I feel it is important to stress that so often it’s not the quick fix we hope for, and definitely not a one size fits all, but staying the course pays off.
As many parents can attest, the emotional load of worries lingers in the mind long after remission is achieved. Teddi was blessed when a coincidental meeting helped renew her trust in the power of the body to heal and thrive long term. Here is her emotional story - the gift of hope that came to visit her family farm.
...continue reading "Crohn’s and liver disease (PSC)"
Dr. David Suskind, a Professor of Pediatrics at the Department of Gastroenterology at Seattle Children's Hospital, is known for his ongoing efforts to study the intricate connections between IBD, Nutrition, and the microbiome.
He conducts ongoing research, participates in and speaks at national conferences, and, most importantly, he is extremely generous with his time and attention when he meets his young patients and their worried parents at the hospital every day.
As part of his mission to teach the importance of nutrition, he created the site Nimbal. The site was launched a few years ago to help patients, families, and healthcare providers integrate dietary therapy as treatment for Inflammatory Bowel Disease.
This week Dr. Suskind is launching yet one more tool he developed to help IBD kids: a comic book for IBD education with an emphasis on the microbiome and healthy nutrition.
...continue reading "The microbiome and healthy nutrition – A new comic book by Dr. David Suskind"