Multiple surgeries and six years of extreme complications due to Crohn’s almost broke Joshua's body and spirit – but he fought back and triumphed!
Pineapple juice can replace barium contrast during MRI with contrast (MRE)
MRE (Magnetic Resonance Elastography) is a specific type of MRI (Magnetic Resonance Imaging) performed with contrast material to produce detailed images of the small intestine. MRE is preferred over CT (Computed Tomography) to reduce repeated radiation exposure, especially because the nature of IBD requires repeat examinations which can result in large cumulative doses.
However, some patients have concern about using the barium contrast. Mild side effects may include stomach cramps, diarrhea, nausea, vomiting or constipation. Rare side effects include allergic reactions like hives, itching, agitation or fast heartbeat. A patient is at greater risk of an adverse reaction to barium-sulfate contrast materials if he has a history of asthma, hay fever, or other allergies.
As it turns out, there are effective alternatives to using barium, namely the artificial drink Breeza or simply natural pineapple juice. Currently there is no clear unified standard, and it is unfortunate that not all doctors and not all imaging centers are willing to adopt these advanced options due to lack of awareness and indifference to patient’s comfort.
The doctor that brought the gift of hope
Teddi Bledsoe and her beautiful family went through several years of the agonizing roller-coaster of pediatric Crohn’s and PSC before they found the right formula of diet and medications that brought their son Colt to remission.
Teddi admits: Many times I felt despair and wondered why things seem to work for everyone else's child and not mine. Yet ultimately answers were found and health resumed. I feel it is important to stress that so often it’s not the quick fix we hope for, and definitely not a one size fits all, but staying the course pays off.
As many parents can attest, the emotional load of worries lingers in the mind long after remission is achieved. Teddi was blessed when a coincidental meeting helped renew her trust in the power of the body to heal and thrive long term. Here is her emotional story - the gift of hope that came to visit her family farm.
Dr. David Suskind, a Professor of Pediatrics at the Department of Gastroenterology at Seattle Children's Hospital, is known for his ongoing efforts to study the intricate connections between IBD, Nutrition, and the microbiome.
He conducts ongoing research, participates in and speaks at national conferences, and, most importantly, he is extremely generous with his time and attention when he meets his young patients and their worried parents at the hospital every day.
As part of his mission to teach the importance of nutrition, he created the site Nimbal. The site was launched a few years ago to help patients, families, and healthcare providers integrate dietary therapy as treatment for Inflammatory Bowel Disease.
This week Dr. Suskind is launching yet one more tool he developed to help IBD kids: a comic book for IBD education with an emphasis on the microbiome and healthy nutrition.
Planned by personal chefs
Approved by the GI team at Seattle Children’s Hospital
Shared here for your inspiration
A complete weekly SCD menu will be served this summer at Camp Oasis Northwest. Campers who use the Specific Carbohydrates Diet as part of their medical therapy will enjoy a fun filled week, including meals and snacks prepared especially for them!
The new SCD menu includes SCD S'Mores and crackers for the camp site fire pit evening, pizza-pasta, meatball fondue, cakes, butternut squash tots, and many more delicious offerings.
The European Crohns and Colitis Organization (ECCO) is the largest forum of medical IBD specialists in the world. The 2018 ECCO Congress drew 6,676 delegates from 86 different countries. Over one thousand abstracts were accepted and presented this year, covering overwhelming amounts of data and analysis. The wide range of topics included novel treatment strategies, IBD diagnosis, disease predictions, management of IBD, evolving concepts in IBD, and Pediatric IBD.
I encourage you to check the detailed agenda of the event. The long lists of studies and presentations demonstrate the magnitude of the IBD challenge, and the enormous investments of money and talent that are being invested in finding better treatment options. This raises hopes for better understanding and ultimately resolution and cure of IBD.
The 5 R framework to manage IBD, Diet therapies, LDN, FMT, L glutamine, medical marijuana, Helminths intestinal worms, and more.
Doctor Samir Kakodkar (MD), a specialist in Crohn's disease and ulcerative colitis , interviews Reid Kimball, who is a Crohn’s patient and a documentary film producer, in this new podcast.
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John Zoshak is a graduate student in the Human Centered Design and Engineering Program at the University of Washington. He is working with Dr. David Suskind of Seattle Children’s Hospital on an independent analytical study that will look at dietary therapy for IBD from a user perspective. This is a quality improvement field study, with the goal of easing the burden of adherence to dietary therapy.
A growing number of posts within the online SCD communities show a photo of a manufactured food product and ask the group "Is this legal?" Unfortunately, there can never be a perfect answer to this question.
A simple, delicious, colorful path to wellness
A strong body of research supports the idea that a vegetable centered diet is key to wellness. Meals based on plant foods are rich in fiber, vitamins, minerals and phytochemicals. Add reasonable amounts of good protein sources, like pastured eggs, sea food, some organic meats, top with healthy unprocessed fats, and you have achieved the optimal diet according to the latest leaders in nutritional research .