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Guest post by Tracy and Atty

Before
Before
At present
At present

 

 

 

 

 

 

 

Tracy: My daughter Atty was diagnosed with severe Crohn's in July 2016. Her GI doctor said it was the worst colon she had seen. Crohn’s was present in her esophagus and throughout her colon, as well as a terrible skin rash all over her legs and part of her upper body. Needless to say, the hospital stay was harrowing, as it included two blood transfusions, a colonoscopy, endoscopy, and an MRE.

...continue reading "Young dancer enjoys SCD and finds time to motivate others"

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The Seattle CCFA NW educational conference, held this past weekend, provided an opportunity to meet and chat with other people who are using diet therapies.

...continue reading "SCD and other highlights from the CCFA NW event"

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by Gil

This dish was created in the tiny kitchen of a college dorm. Gil is eating SCD since he was in elementary school. Now a college student, he first created this dish in a regular pot at his dorms. On his last visit home he adapted it and made it in the instant pot, which saves cooking time and results in a delicious soft stew meat.

...continue reading "Instant Pot Asian Beef Stew"

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Exclusive Elemental Nutrition (EEN) has been studied extensively worldwide and has been scientifically proven to be more effective than steroids in achieving sustained remission from IBD flares in most cases. It refers to an exclusive liquid diet using either elemental or polymeric formulae. The patients are not allowed to have any other dietary items except plain water and sometimes a few other beverages.

EEN is safer, and can be easier to endure, than the side effects of steroids. It is a first-line treatment for IBD flares in Japan and in some European countries. It does require close medical supervision, especially when practiced by pediatric patients.

...continue reading "Remission without steroids – liquid diets and EEN"

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Guest post by Nicole Chevalier

Like many other kids, our son is enthralled by the Harry Potter book series. He recently finished the last in the series (Harry Potter and the Deathly Hallows) and promptly began the first book all over again. So, when I realized Harry Potter’s birthday was coming up in a couple of weeks, I thought it would be a great opportunity to celebrate our family’s love for these stories.

Unlike a lot of other families though, ours is on a medical diet – the Specific Carbohydrate Diet – for my son’s ulcerative colitis diagnosis. We all follow SCD in support of him. 

...continue reading "Harry Potter’s SCD Feast!"

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© 2010 by Marilyn L. Alm

This “Chocolate” cake is the most famous SCD cake. It is known to be the center-piece of many celebratory occasions. It is not only a fancy birthday cake, but also makes great brownies, or muffins, or cookies, when baked in different bakeware. Vanilla ice-cream between two “chocolate cake” cookies is a favorite birthday treat at many SCD kid's birthday parties. When pecan flour is not available, the cake works well with almond flour.

Marilyn Alm. is a veteran SCD expert and the owner and mentor of the international SCD Yahoo group (BTVC-SCD@yahoogroups.com). Like thousands of other SCD users, I am forever grateful for her life’s work and her generous mentoring.
She is also gifted in the kitchen, and is known to create many mouthwatering SCD recipes. We love this cake and share this recipe here with Marilyn’s permission. 

...continue reading "Marilyn’s SCD “chocolate” cake"

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When parents send their teens to college they assume that when paying for their child’s tuition and health insurance, they will have the right to be informed and consulted in case of an illness, an accident or other health challenges. THIS IS NOT SO! Parents have no legal right to obtain medical information about their college age son or daughter.

...continue reading "Helping your college student in case of a medical emergency"

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We started the Specific Carbohydrate Diet (SCD) when our son was in elementary school and continued to practice the diet consistently all the way through high school. We mentored hundreds of SCD families and became actively involved in supporting diet therapies research. With all of this accumulated experience, I expected the shift to SCD during college to be easy and go smoothly.

It was not as easy as we had expected.

...continue reading "Maintaining SCD at college"

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This past December, it seemed as if I needed to install a special tap by the kitchen sink for vanilla extract. At the rate we were going through it, I was convinced someone was washing dishes in the stuff.

A bit of research online and I determined that it was fairly easy to make our own, the quality would be higher, and the price would be  cheaper. Here is the kicker, only two ingredients are required: a 40% alcohol based solvent (commonly known as vodka) and organic vanilla beans. 

...continue reading "Vanilla extract – a delectable SCD pleasure"

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